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Listserves

BC Down Syndrome Connection Listserve

To connect parents or caregivers of children with Down syndrome within the Province of BC to discuss provincial funding issues, respite benefits, and additional services & therapies that should be available to our children. We also include discussions on nutritional interventions and health issues related to Down syndrome. This listserve is also available to those residing outside the province of BC.

Should you wish to join the BC Down Syndrome Connection listserve, please email your name, address, telephone number and email address to This e-mail address is being protected from spambots. You need JavaScript enabled to view it . This information will be kept by the listserve owner. Please also advise if you have a child with Down syndrome (age) or if you are a caregiver of a person(s) with Down syndrome. Thank you.

 

The Down Syndrome and Autistic Spectrum Listserv

The Down Syndrome and Autistic Spectrum Listserv

The DS-ASD listserv (also called DS-autism) has been operating since 1997 under the management of Joan Guthrie Medlen. Active Moderators include Mary Beth Paul and Donna Duffey.

The ds-autism list is a place for families and professionals to discuss the unique, challenging, humorous, and sometimes tiring aspects of supporting a person who is dually diagnosed with Down syndrome and autism, autistic spectrum disorder, or Pervasive Developmental Disorder (PDD). After receiving this diagnosis from a qualified professional, it is often difficult for families of children with a dual diagnosis to locate other families with whom they can openly share their concerns and wade through the many strategies for supporting children and adults with Down syndrome and autism. Families of children with this dual diagnosis often do not feel like they "fit" at the local Down syndrome support group, and yet, they don't "fit" at the local autism support group. As a result, it is not uncommon to feel isolated and alone in daily struggles. At the same time, more and more parent groups are seeking ways to provide the support families of children with dual diagnoses need. These are topics we talk about often on the ds-autism listserv.

The ds-autism listserv now has over 1300 members, although not everyone participates in the discussion. Every family is looking for a different type of support. Some will prefer to actively discuss issues, while others prefer to sit back and listen. There is no right or wrong way to participate. We encourage discussions that are compassionate and respectful regarding teaching strategies, daily struggles, IEP struggles, and medical information focusing on possible solutions and activities that will encourage our children to be successful.

Membership to this Yahoo Groups List is moderated and preference is given to those who are living with and/or working with someone with the dual diagnosis of Down syndrome and autism. We do our best to protect the privacy of those in our membership.

To join this listserve click on this link:

http://groups.yahoo.com/group/ds-autism/

and follow the directions on the home page about how to request membership. PLEASE NOTE: This list does not cover the broad issues concerning Down syndrome, such as welcoming new parents or learning all about DS, nor is it about "just" autism. Often we get requests from folks who think this is for either DS or autism. They would be very disappointed, as our lives truly intersect the two communities. Our members usually say they feel left out in the DS community support groups and they are equally out of place in "just" the autism community. The DS-autism list tries to provide a soft place for them to land where they can finally find other families who are living with the same enormous challenges they face.

   

Einstein Syndrome Listserve

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The Einstein-Syndrome list is designed to provide a place for parents and professionals to share positive information for helping their children become all that God wants them to become, not bound by the negative stereotypes that accompany a diagnosis of Down Syndrome. Positive approaches to health, nutrition, disease prevention, education, therapies, social and spiritual training are discussed. This includes but is not limited to targeted nutritional intervention (TNI, NuTriVene-D and MSBPlus) and other vitamin therapy; NACD, ICAN and other neurodevelopmental approaches; early intervention, therapies, and schooling options.

 

If you are interested in joining this listserve, please go to this link:

 http://einstein-syndrome.com/join/

The Einstein-Syndrome list is designed to provide a place for parents and professionals to share positive information for helping their children become all that God wants them to become, not bound by the negative stereotypes that accompany a diagnosis of Down Syndrome. Positive approaches to health, nutrition, disease prevention, education, therapies, social and spiritual training are discussed. This includes but is not limited to targeted nutritional intervention (TNI, NuTriVene-D and MSBPlus) and other vitamin therapy; NACD, ICAN and other neurodevelopmental approaches; early intervention, therapies, and schooling options.
The Einstein-Syndrome list is designed to provide a place for parents and professionals to share positive information for helping their children become all that God wants them to become, not bound by the negative stereotypes that accompany a diagnosis of Down Syndrome. Positive approaches to health, nutrition, disease prevention, education, therapies, social and spiritual training are discussed. This includes but is not limited to targeted nutritional intervention (TNI, NuTriVene-D and MSBPlus) and other vitamin therapy; NACD, ICAN and other neurodevelopmental approaches; early intervention, therapies, and schooling options.

If you are interested in joining this listserve, please go to this link: http://einstein-syndrome.com/join/