The Oral-Motor Myths of Down Syndrome
The Oral-Motor Myths of Down Syndrome
By Sara-Rosenfeld-Johnson, M.S., CCC-SLP
Published in ADVANCE Magazine August 4, 1997
There is a visual impression that each of us holds in our mind when we think of a child or adult with Down syndrome. As a Speech Pathologist in private practice for twenty-five years and as a continuing education instructor for speech and language pathology classes on Oral-Motor Therapy, I have learned that this impression is a powerful teaching aid. When I teach, I ask the participants to tell me what they consider to be the characteristics of a Down syndrome child, or any low-tone child from an oral-motor pint of view; without fail I get the same responses. Their portrayals have become so predictable I have come to refer to them as the “Myths of Down syndrome”. This is what these professionals see: a high narrow palatal vault, (Myth # 1), tongue protrusion (#2), mild to moderate conductive hearing loss (#3), chronic upper respiratory infections (#4), mouth breathing (#5), habitual open mouth posture (#6), and finally, the impression that the child’s tongue is too big for its mouth (#7).
These seven structural/functional disorders have been plausibly associated with Down syndrome, so why label them myths? Because the children my associates and I have worked with over the past fifteen years no longer exhibit these characteristics. The therapeutic community has inadvertently allowed these myths to flourish because we didn’t recognize that they could be prevented. These abnormalities emerge in most children by the time they enter early-intervention programs. What has been missing in our treatment that has allowed them to develop? How do we pursue prevention?
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